It has been quite a whirlwind of 3 weeks since my last post. What was going to be simple with a kidney clinic visit and then Halloween, turned all upside down when Amelia’s grandma passed away. We had a lot to do with that but we still managed to pull off our Halloween celebration.
It was not quite the same for Halloween, with all of the COVID Beast’s doing, but the kids still managed to get some Trick or Treating in, and they got to wear their costumes. We stayed home a lot and watch a whole potload of Halloween movies this year. We also decorated our house more than we have for a few years. We got out the big spider web and all of the blow up characters along with the reaper. He is always there. We also made some fun signs and blocked off the stairway so the kids couldn’t come to the door to trick or treat. We made a slide from PVC pipe that went the length of our handrail and delivered candy to the kids at the bottom. Our signs directed the kids to howl like a werewolf, or cackle like a witch to get candy. Leatha had great fun listening to kids come again and again and do different things for candy.
We also made it to a corn maze as a family. We had fun going around the maze and the kids liked the slides and stuff there. Amelia was able to walk around quite a bit. She went with Leatha and made it all the way to the top of the corn maze and back. She did really well.
On Friday before Halloween we went for a drive up over the Nebo loop just to decompress after Grandmas funeral. It was nice just to drive in the mountains. We stopped and roasted hot dogs for dinner and just had a good time being outside and together.
We did finally have kidney clinic on the 3rd after much argument with them. We are still having issues with getting things communicated in a clear manner. They scared Amelia with talks of dialysis and getting ready for that, much of which is unnecessary at this time. We are working all of this out with her new medication changes and her generally downhill direction. She hasn’t been feeling well overall. Not sick per say, but just feeling crummy and having less energy. They are working on her medications and adjusting them now.
Amelia is still on the transplant list, and still waiting. We will see what comes next and keep trying to keep her as normal as possible.
Still coming to you live, 139 days into the new kidney journey
-Justin
