Well the time is here. This is our first set of appointments towards getting Amelia on the transplant list again. Today we will meet the team (again. Not like we haven’t known them for 13 years now) and they will educate us on the transplant process. This is a requirement for her to be considered for the transplant list. I will be adding to this post as we have the appointments. Luckily, they are all teledoc appointments over the internet and we can stay home for them. More to come on these as we go!
12:00 pm Ok, we have finished the first hour and a half of our clinic appointment. There was a lost of information about transplant and the basics. I can remember doing this the first time, but Amelia doesn’t remember this so it is new and overwhelming for her. This has been a good refresher for me, some things I didn’t remember. I just have to say, Wow. I can’t believe that this is here again. Now we are on with the dietitian. More updates to come!
1:00 PM a lot of information from the dietitian, most of which we have been doing pretty well with over the years. a couple of new recommendations, and some things that we needed a refresher on. Going onto the doctor now!
2:45 PM ok just got finished with a TON of information from the doctor. That was a huge bit and Amelia is very intimidated by it. Some interesting things with COVID, they don’t have much data for the effects on transplant, but we have to be very careful with Amelia. If she has a positive test or contact with people that can be suspected of having COVID, she may not be able to have a transplant. They will not accept a donor that has had COVID. In light of this, our family quarantine just got a bit tighter, down to changing clothes after shopping or going to work. We just can’t take chances with this stuff and having that affect Amelia. Looks like we will be seeing most people over the internet! Our next appointment is at 4 with the transplant surgeon. More with that then!
4:15 PM Well that was a quick visit with the suregeons. We talked with the Physician’s Assistant because the main surgeon was in surgery! We will meet him later for sure. Amelia got a bit of information about what to expect for the surgery.
All of this is a bit much for Amelia to process and it is going to take her a bit to get all of it figured out. She is writing a post right now about it, that should be fun.
Tomorrow we will be up at Primary Childrens most of the day for more evaluation. Hopefully, there will not be anything that will bar her from the transplant list, we don’t expect there to be.
Coming to you live 29 days into this new kidney journey,
-Justin
