January has been, interesting to say the least. We have been watching Amelia get sicker and sicker over the past few weeks. She has lost much of her appetite for anything that doesn’t include copious amounts of garlic, because that is a strong flavor that she can actually taste with all of her medicine. We made garlic fries ala Seattle Mariners and she ate a whole bunch!
She has been more lethargic and gets worn out easily. Even her beloved drives seem to wear her out more than they should. It is disheartening to watch her go down like that. When her disease first hit, it was rather quick and then took a long time to get to to normal. This go around, she has gone downhill from normal rather quickly. It is hard to see for us as parents.
We still have hope though. When the time is right, she will get her transplant. These trials willhave a purpose in the future, and we will all be stronger when we get through it.
Thanks again for all of your continued prayers and well wishes.
Still coming to you live, 219 days into this new kidney journey,
Justin
I am so sorry to hear that isn’t doing as well as she was. Let me know if there is anything I can do for her or your family!! Love you all!! She is such a sweetheart!! Prayers coming your way!