Hello! It’s been a loooonngg time since we last updated! Lots of things have happened and for the most part all good!
I am back in school, but this time High school! I am still distance learning, but they have a much better system this year. It is the end of quarter one and I am doing pretty good! All A’s as far as I’m aware. I get everything in and my teachers have been really nice! I do have one class I go in-person for but it’s a small class and not in the actual school itself. I have been quite stressed about school because I really want to do good and so far I’m told I am. It has been tricky catching up from all the school I’ve missed over the past 2 years. But I’m getting there. I have a much better score in math than I’ve had in a long time. It has taken me a few weeks to figure out a good schedule for waking up at 7:00, But I’ve basically got it! It also is hard yet helpful in a way when Bones joins me during school, usually just sleeping!
Health wise I’ve been doing so good! I am now on once a month appointments and blood draws! This is after every two weeks. I’m just glad I don’t have to get checked out of my classes for them. I am also glad that we don’t have to go in all the time! My BK virus is completely not showing, or as low as it will usually be! But this is after about three different tests. Which isn’t super bad because last time it was many, many more and each time it got lower so it was all good! They also ended up adjusting a couple of my meds for that but all of my other labs have been really good, showing that I have been getting all of my water and my milk. (Even though milk has been tricky for me!) It is also saying that my kidney is working super well and it isn’t causing problems, so I’m on a lower of my anti-rejection med because it is working! I have been doing very well and have only gotten sick once this season, which was sort of surprising to me. I could have gotten sick so many other times but I haven’t, which is very good!
I have been able to do more lately even if that isn’t a super ton. I’ve never been able to do everything so I’m not upset by this. We have gone to the Utah Hogle Zoo a few different times and I’ve been able to walk some if it, spending the rest of it in a wheelchair so I can still enjoy the animals. We have gone on numerous day drives and camp outs. Just little things when we can add them in there. I have been able to go on more walks with the Dogs for my exercise. I’ve also been able to do more with my sister, we have gone on multiple outing every once in a while. Sometimes to just get out of the house.
I have been crafting a lot more because they lowered my med that makes me shake. So I’ve been doing lots of cross stitching. Which I very much enjoy even though it might take me forever to finish, because it’s a pre-drawn out cross stitching lap blanket. I think I’ve been working on it since August and I’m only done with a tiny bit. But I don’t mind as much as I usually would.
Hey everyone! now that I have been doing so much better and not much has been happening since school has started, this blog is going to hit a major lull. Because I am feeling better It’s just not going to be updated a lot. We will try to update every few months or so just for an update with reassurances about how we are doing as a whole family. This way you know. Thank you everyone for following and caring. It means a lot more that I can express.
~Amelia